Cross-Cutting

INFORM RARE investigators are conducting cross-cutting research to develop and enhance the methods that we and others use to generate meaningful evidence about interventions and outcomes in the field of rare diseases.

Patient Engagement

Learn more about patient partnership and engagement at INFORM RARE here.

Patient registries

Explore our patient registries here.

Trial Methods

Learn about our innovative clinical trial methods here.

Health Economics

Discover our projects related to economic impact here.

Research Ethics

Explore our projects investigating research ethics here.